Talking End of Life (TEL) ...with people with intellectual disability is a resource that shows you how to teach people with intellectual disability about end of life. It is designed for disability support professionals (DSPs) but is also helpful for families, health professionals, and educators. With assistance, people with intellectual disability might also find the TEL information helpful. TEL reflects 10 years of Australian research on end of life and people with intellectual disability. TEL is an online version of the Dying to Talk project, an Australian Research Council funded partnership between The University of Sydney, Keele University in the UK, and Unisson Disability.
Pediatric Palliative Care: Pediatric Oncology Group of Ontario (POGO) is working with the palliative care community to support joint efforts to expand access to pediatric palliative care services and supports for children and youth in Ontario, and their families, including children who are treated in the childhood cancer care system. Below if a link to the POGO Pediatric Palliative Care Resources to support Health Care Providers.
Health Quality Ontario (HQO) has a legislative mandate established under the Excellent Care for All Act 2010 to evaluate new health care technologies and services for effectiveness; to report on the health care system's quality and provide support for quality improvement. The agency also provides evidence-based recommendations concerning health care funding; public reporting across all health sectors including long-term care, home care and primary care. Health care providers can join Quorum, an online community dedicated to improving the quality of health care across Ontario Quorum supports quality improvement work by allowing providers to: Find and connect with others working to improve health care quality Identify opportunities to collaborate Stay informed with the latest quality improvement news Give and receive support from the community Share what works and what doesn’t See details of completed quality improvement projects Learn about training opportunities Join a Community of Practice To be redirected to HQO’s palliative care quality standards for Ontario click here: https://www.hqontario.ca/evidence-to-improve-care/quality-standards/view-all-quality-standards/palliative-care . To learn more about Quorum where palliative health care providers seek advice and support on implementing quality improvement projects related to palliative care click this link https://www.hqontario.ca/Quality-Improvement/Quorum
Hospice Palliative Care Ontario: Hospice Palliative Care Ontario is a provincial association for hospices and palliative care providers, professionals, and volunteers throughout Ontario. Their Mandate: Encourage, develop, support, and provide leadership and guidance in the field of hospice palliative care in Ontario Promote the development and expansion of hospice palliative care services in Ontario Develop Standards for Hospice Services and accredit hospices Promote research in the field of hospice palliative care Provide hospice palliative care education for health professionals, volunteers, and the general public
Wellspring is a resource for patients and caregivers that provides specialized programs designed to provide connection and belonging; ease pain, fatigue and distress; build strength and mobility; and support financial and workplace challenges for people diagnosed with Cancer.
Ontario Centers for Learning Research and Innovation in Long Term Care: Ontario CLRI is funded by the Government of Ontario and hosted at Baycrest Academy for Research and Education, Bruyère Health Research Institute, and the Schlegel-UW Research Institute for Aging. The collective expertise, resources, and partnerships of the host organizations help advance the Program’s provincially mandated goals. The Ontario CLRI helps the province’s 600+ LTC homes to enhance the quality of life and care for residents. The Program educates and trains the current and future LTC workforce and provides solutions to pressing issues, including an aging population, care complexity and workforce challenges. Link: https://clri-ltc.ca/ Click on Resources at the top of the page. Once on new page scroll down to drop down menu that says “all audiences”. Click on the drop down button and change to your specific designation/role to find specific resources, education and/or links relevant to your practice. (French Resources Available)
The Canadian Virtual Hospice provides support and personalized information about advanced illness, palliative care, loss and grief, to people living with illness, family members, people working in healthcare, educators, and researchers. The Canadian Virtual Hospice is a division of the International Centre for Dignity and Palliative Care Inc., a registered charity. Through this website you can access both information about topics in hospice palliative care; as well as resources and education to support you as a health care professional caring for people living with a progressive life-limiting illness (French Resources Available)
Ontario Caregiver Association: The Ontario Caregiver Organization (OCO) exists to improve the lives of Ontario’s 4 million caregivers. Caregivers are ordinary people who provide physical and emotional support to a family member, partner, friend, or neighbor. The OCO supports caregivers by being their one point of access to information, so they have what they need to be successful in their role. The OCO works collaboratively with caregivers, healthcare providers and other organizations to improve the caregiving experience. How? By finding ways to make existing services more broadly available By ensuring all caregivers, regardless of age, disease, diagnosis, or location within the province can access support By identifying gaps, and working with partners to find new ways to fill them Link: https://ontariocaregiver.ca/ for Health Care Provider Resources, education and links see top ribbon on website and click on the 3 horizontal lines next to help Line Chat. (French Resources Available)
